Neuro Living Well Programme

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Our Neuro Living Well programme

Being diagnosed with a life limiting Neurological/Neuro-Muscular illness can leave you feeling isolated. Our Neuro Living Well Programme aims to equip you with some tips and techniques to help you live well with your illness.

Through a structured 6 week programme, with a themed session each week, the Neuro Living Well programme will provide you with the opportunity to ask questions and learn where to access information, as well as socialising and being part of a supportive hospice community. Each week there will also be the opportunity for a 'cuppa and chat' during the session, enabling you to discuss what's on your mind or just connect with others in the group in a relaxed environment.

Carers' café

There will be a space reserved in the Hospice Sanctuary for a 'Carers' Café', for carers to enjoy tea and cake, have an opportunity to talk with our hospice staff, connect with other carers and enjoy some quiet time.

Chris and Penny give an overview of how they've found the Neuro Living Well programme:

Session content

Week 1: Welcome & Fatigue Management - Advice from Hospice Occupational Therapist
Week 2: The Emotional Impact - Discussions with a member of the Psychological Therapies Team
Week 3: Breathlessness Management - Advice from Hospice Physiotherapist
Week 4: 'What’s important to me' - Discussions with Spiritual Care team lead
Week 5: Future Planning - Information from Hospice Social Work Team
Week 6: Mindfulness & Relaxation - Educational session with Support Therapist

"I attended the Neuro Living Well 6 week course. It was good to be able to meet with other people with similar but varied versions of Neurological problems. We were treated very gently and with a lot of recognition of our limits in communication and physicality. The 6 weeks offered thoughts and suggestions on a number of issues related to our symptoms and circumstances."

How to attend

This course is available to anyone living with a life limiting neurological/ neuro-muscular condition living within our catchment area. If you are unsure please contact us on the number below.

You can be referred to us by speaking to your GP, Neurologist, MND/Neuro-Muscular Care Co-ordinator or Hospital Community Nurse Specialist (CNS). If you already have a St Peter's Hospice Community Nurse Specialist, then please speak to them. After a referral has been made, you will receive a follow up phone call from one of our team to triage you for the course.

If you'd like to contact us directly about the sessions, please call 0117 915 9469 (Mon-Fri 9am-5pm).

Further details of the course, carers' café, access info and FAQs can be found in our information booklet linked below.

Neuro Living Well Programme leaflet

"When we started going to the Hospice, we suddenly didn't feel so alone. It's opened so many doors for us. It's having someone you can trust. We felt that we'd turned a corner when the Hospice got in touch, it changed so much for us."

Living Well Programme

Fatigue and Breathlessness Support

Art and Craft Sessions

Drop In Sessions

Getting Referred

Support for Carers